Resources
MIDWEST HEMOPHILIA ASSOCIATION (MHA)
PO Box 412866 • Kansas City, MO 64141 • 1-816-479-5900
NATIONAL HEMOPHILIA FOUNDATION (NHF)
1-800-42-HANDI • www.hemophilia.org
REGION VII HEMOPHILIA PROGRAM REGIONAL COORDINATOR
Becky Dudley, LCSW, • 1-816-234-3508 3848• Toll Free 1-800-236-1713
UNIVERSITY OF MISSOURI HOSPITAL AND CLINICS HEMOPHILIA TREATMENT CENTER
Dr. Barbara Gruner • 1-573-882-9355
KANSAS CITY REGIONAL HEMOPHILIA CENTER
Dr. Brian Wicklund, Dr. Shannon Carpenter, Dr. William Jennings, Judy Kauffman, RN, MS, CPNP, Andrew Wilson, RN, CPHON,
Katie Foote, LMSW
1-816-234-3508 • Toll Free 1-800-236-1713
KANSAS HEMOPHILIA OUTREACH NURSE
Kay Stewart, RN • 1-316-962-2012 • 1-800-332-6262
The following links are provided by the National Hemophilia Foundation:
1) NHF’s Research Grants and Fellowships: http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=56&contentid=51
2) NHF’s Medical and Scientific Advisory Committee (MASAC): http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=36&contentid=386
3) UDC/ATHN: http://www.cdc.gov/ncbddd/blooddisorders/udc/ and http://www.athn.org/
4) Patient Notification System: www.patientnotificationsystem.org
5) NHF’s Steps For Living: www.stepsforliving.hemophilia.org
6) NHF’s Victory for Women: http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=337&contentid=1565&rptname=women