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BEGIN:VEVENT
UID:348@midwesthemophilia.org
DTSTART;TZID=America/Chicago:20250125T120000
DTEND;TZID=America/Chicago:20250125T150000
DTSTAMP:20241204T232529Z
URL:https://midwesthemophilia.org/events/community-outreach-program-build-
 your-support-system/
SUMMARY:Community Outreach Program: Build Your Support System - Top Golf - 
 25 Jan 25 12:00
DESCRIPTION:\nKick off your afternoon with a fun-filled game of Family 
 Feud: Bleeding Disorders Edition\, with prizes\, presented by Jeanette Jo
 nes\, BioMatrix Representative. \n \nThen\, be encouraged and inspired w
 ith Krissy\, Common Factors Advocate\, as she delves into the topic of "B
 uilding Your Support System."\n\nKrissy's heartfelt journey as a mother o
 f a child with hemophilia is a testament to the power of community and fam
 ily. Her experience is filled with both challenges and triumphs\, underpi
 nned by the unwavering support of her husband and the broader network she 
 cultivated. Initially overwhelmed by her son Brody's diagnosis\, Krissy fo
 und her footing through active participation in local chapters and online 
 groups for mothers in similar situations. These connections provided her 
 with invaluable insights and shared experiences\, empowering her to help B
 rody achieve greater independence in managing his healthcare.\n\nDespite o
 ngoing questions about Brody's future\, such as preparing him for driving 
 and when to disclose his condition to others\, Krissy's robust support sys
 tem equips her to navigate these challenges with confidence.\n\nLunch and
  Golf Bays included in the day's activities. Don't miss this opportunity t
 o learn\, connect\, and have fun!\n\nRegistration closes January 18th!\n[g
 ravityform id="105" title="true" description="true"]
CATEGORIES:Community Outreach Program
LOCATION:Top Golf\, 2976 N. Greenwich Rd\, Wichita\, Kansas\, 67226\, Unite
 d States
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