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BEGIN:VEVENT
UID:282@midwesthemophilia.org
DTSTART;TZID=America/Chicago:20230506T130000
DTEND;TZID=America/Chicago:20230506T160000
DTSTAMP:20230427T223058Z
URL:https://midwesthemophilia.org/events/community-outreach-program-may-6-
 2023/
SUMMARY:Community Outreach Program: Common Factors - Top Golf - 6 May 23 13
 :00
DESCRIPTION:\n\nOpen to all bleeding disorders\, please join your MHA commu
 nity to a CSL Behring: Common Factors Educational Program presented by P
 atient Advocate\, Shando J.\n\nPlease RSVP by Friday April 28\, 2023. Spac
 e is limited.\n\n\nMy Life at a glance\n\nWhen my son Michael was four yea
 rs old\, he tested positive for severe Hemophilia B. Hemophilia is prevale
 nt in my family\, so I knew that his life was going to change\, but I didn
 't want hemophilia to become the focus of either of our lives. He was alwa
 ys an active kid. He swims\, rides horses\, and lifts weights. Over the ye
 ars\, I have learned the importance of taking a proactive role in working 
 with his doctors to manage his bleeding disorder. Caring for Michael made 
 me diligent and fine-tuned my perspective about hemophilia. Even though I 
 never showed any signs or symptoms\, it was because of my knowledge and in
 volvement in the hemophilia community that I was able to insist on testing
  which led to my own diagnosis with hemophilia.\n\nThank you to our sponso
 rs CSL Behring and Brothers healthcare for sponsoring the program\, lunch 
 &amp\; Topgolf play bays for attendees!\n\nThank you to our Title Sponsors
 :\n\n\n\n\n&gt\;\n\n\n\n\n\nCSL Behring Common Factors - Topgolf Invite_Ov
 erland Park KS 5.6.23\n\n[gravityform id="68" title="true" description="tr
 ue"]
CATEGORIES:Community Outreach Program,Education
LOCATION:Top Golf\, 10611 Nall\, Overland Park\, KS\, United States
GEO:38.93633810000001;-94.64891539999996
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=10611 Nall\, Overland Park\
 , KS\, United States;X-APPLE-RADIUS=100;X-TITLE=Top Golf:geo:38.9363381000
 0001,-94.64891539999996
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DTSTART:20230312T030000
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