Make Your Voice Count!
Advocacy is core to who we are.
Join us in raising awareness for bleeding disorders AND in advancing policies that improve the daily lives of individuals and families across our community.
As a grassroots organization, our strength comes from passionate advocates stepping up and speaking out. Your lived experience matters. Your story matters. YOUR voice is vital to our mission — and is how we create real systemic change.
2026 Legislative Priority: Why Access Matters
This year, our focus will be ensuring that all Kansans with chronic bleeding disorders have consistent access to lifesaving medications. We are advocating for policies that eliminate barriers, protect insurance coverage, and support timely, affordable treatment.
By sharing the real-life experiences of our community, we aim to show lawmakers what life is like with a bleeding disorder — and what it could be without access to care. Every story we share helps drive change and safeguard the health and futures of those we serve.
Take Action. Stand With Us.
We need advocates, families, caregivers, young adult leaders, and community supporters all lending their voice to this movement.
Register by March 2 to be part of the advocacy team we take into this legislative season.
Your presence matters. Your participation shifts outcomes.
Let’s show lawmakers that our community shows up — together.
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