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UID:303@midwesthemophilia.org
DTSTART;TZID=America/Chicago;VALUE=DATE:20240306
DTEND;TZID=America/Chicago;VALUE=DATE:20240309
DTSTAMP:20240101T200324Z
URL:https://midwesthemophilia.org/events/nbdfs-washington-days-2024/
SUMMARY:NBDF's Washington Days 2024 -  - 6 Mar 24 00:00
DESCRIPTION:\n\n\n\n\n\nCalling all seasoned and aspiring advocates!\n\n\n\
 n\n\n\nCalling all seasoned and aspiring advocates! NBDF’s annual advoca
 cy gathering – Washington Days – is back in-person in 2024! Now is the
  time to connect with your elected officials and share why policies that i
 mpact the inheritable blood and bleeding disorders community are important
  to you and your community.\n\n\n\n\n\n\n\nIt is especially vital to atten
 d if you have a new Congressional member who may not know much about our c
 ommunity. It is essential that we make connections to new members as soon 
 as possible so they can better serve the needs of families with inheritabl
 e blood and bleeding disorders. Last year we had participants from 46 stat
 es. Let’s aim for 50 states and Puerto Rico this year!\n\n\n\n\n\n\n\nNB
 DF continues to closely monitor Congress\, especially how it plans to addr
 ess our priority issues. More detailed information about our policy issues
  will be shared in the coming weeks.\n\n\n\n\n\n\n\nRegistration is now op
 en\, so sign up to make an impact and get ready to:\n\n 	Discuss funding f
 or federal inheritable blood and bleeding disorder programs\n 	Explain why
  policies that increase affordability of coverage and access to care are i
 mportant to you\n 	Gain skills in public speaking and networking\n 	Make f
 riends and meet other community members\n 	And more!\n\n\n\n\n\n\nWednesda
 y\, March 6 – Friday\, March 8\, 2024\nHyatt Regency Washington on Capit
 ol Hill\nWashington\, DC\n\n\n\n\n\n\n\n\nDiscounted Hotel Room Rate\n\n\n
 \n\n\n\nNBDF is pleased to provide you with a discounted room rate at the 
 Hyatt Regency Washington on Capitol Hill for March 6 &amp\; March 7 of $26
 5 (plus tax) per night for single/double occupancy. If you are interested 
 in arriving early\, or extending your stay\, there is limited availability
  at our group nightly discounted room rate.\n\n\n\n\n\n\n\nThe deadline to
  secure a hotel reservation with the group rate is January 15\, 2024. Plea
 se reserve your rooms early as they are based on availability. If you have
  any questions regarding registration/hotel reservations or need to make c
 hanges\, please contact Johanna Ong at jong@hemophilia.org.\n\n\n\n\n\n\n
 \nQuestions about what to expect at Washington Days? Email advocate@hemop
 hilia.org.\n\n\n\n\n\n\n\nHope to see you in March\,\n\nNathan Schaefer\nS
 VP of Public Policy\, NBDF\n\nP.S. Find out who your elected officials a
 re.\n\n\n\n\n
CATEGORIES:Advocacy
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