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BEGIN:VEVENT
UID:412@midwesthemophilia.org
DTSTART;TZID=America/Chicago:20260302T190000
DTEND;TZID=America/Chicago:20260302T200000
DTSTAMP:20260126T214657Z
URL:https://midwesthemophilia.org/events/virtual-vwd-celebration-embrace-l
 ife-in-full-color/
SUMMARY:Virtual VWD Celebration - Embrace Life in Full Color -  - 2 Mar 26 
 19:00
DESCRIPTION:\n\n\nJoin us for a Virtual Von Willebrand Disease (VWD) Day C
 elebration\, a fun and meaningful online event bringing our bleeding disor
 ders community together. This interactive experience blends education\, c
 onnection\, and play\, all in honor of celebrating &amp\; raising awarenes
 s for von Willebrand disease.\n\nKevin Ellebrecht\, Community Education Sp
 ecialist with Takeda\,  will lead an educational presentation focused on 
 understanding and living well with von Willebrand disease (VWD). He will c
 over the basics of what VWD is and the role of von Willebrand factor (V
 WF)\, why taking steps to help prevent bleeds is important\, and how to 
 feel empowered to advocate for yourself or a loved one to reach treatmen
 t goals. Attendees will also learn about Vonvendi®\, including what it i
 s\, who it may be for\, and how it works.\n\nAnd yes\, there are prizes!
  Attendees will have multiple chances to win while engaging and having fu
 n.\n\nWhether you’re newly diagnosed\, a parent\, or a supporter\, this 
 celebration is a welcoming space to learn\, laugh\, and feel connected!\n\
 n\nOnce you register below\, a zoom link will be emailed to you a couple d
 ays prior to the event.\n\n\n\n[gravityform id="141" title="true" descript
 ion="false"]\n\n[slick_logo_carousel id="2572"]
ATTACH;FMTTYPE=image/jpeg:https://midwesthemophilia.org/wp-content/uploads
 /2026/01/VWD-Day-2026.png
CATEGORIES:Advocacy
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