Improving the quality of life for those affected by hemophilia and other bleeding disorders
The Midwest Hemophilia Association is a non-profit organization formed to promote awareness, provide group support, educate, and facilitate communication for the bleeding disorders community of Kansas and Missouri. We provide information on available treatments, insurance and reimbursement issues, and related legislative efforts.
We also sponsor educational seminars and conferences, publish a quarterly newsletter, and hold special social events for the benefit of our members. In an effort to ease the adjustment to living with a chronic bleeding disorder, MHA’s partnership with NHF’s Steps for Living program provides an avenue of support and education for families of newly diagnosed family members with a bleeding disorder. In addition, the MHA hosts a one-week summer camp every August specifically for kids ages 7 – 17 with bleeding disorders.
2016 Board of Directors
Officers
Aimee Tempera
President
Mobile Phone: (316) 518-0524
Email: aimee@midwesthemophilia.org
Brooke Connell
Vice President
Email: connell_broke@yahoo.com
Jaci Colter
Treasurer
Email: jaci1173@yahoo.com
Debbie Nelson
Secretary
Email: dlnelson@cmh.edu
Board Members
Kristin Marema
Email: mucarleton@hotmail.com
Jennifer Rentschler
E-mail: jensarbonne@live.com
Angela Brown
Email: brownhousemom@gmail.com
Dennis Hisek
Email: umden@aol.com
Alex Meisch
E-mail: meischalex@gmail.com
Executive Staff
Mark Cox
Executive Director
Midwest Hemophilia Association Office
8900 State Line Road, Suite 411
Leawood, KS 66206
Office: (816) 479-5900
Mobile Phone: (913) 220-9687
Email: mcox@midwesthemophilia.org