Who We Are
The Midwest Hemophilia Association (MHA) is dedicated to serving individuals and families affected by bleeding disorders throughout Kansas and western Missouri. Since our founding in 1991, MHA has worked to build a stronger, more connected community through education, advocacy, outreach, and support.
We understand that living with a bleeding disorder impacts every stage of life – from diagnosis and treatment to school, work, relationships, and everyday activities. Our goal is to ensure no individual or family has to navigate those challenges alone.
Our Mission
MHA empowers the bleeding disorders community through education, advocacy, support services, and community connections while promoting access to quality care and improved quality of life.
What We Do
Education
MHA provides educational programs for individuals, caregivers, and community members of all ages. Through workshops, conferences, webinars, and hands-on learning opportunities, we help families stay informed about treatment advancements, insurance navigation, wellness, and everyday life with a bleeding disorder.
Advocacy
We advocate for policies and programs that protect access to quality healthcare, treatment, and resources for those living with bleeding disorders. MHA works alongside national and local partners to ensure the voices of our community are heard.
Community Support
Living with a chronic condition can feel isolating. MHA creates opportunities for individuals and families to connect, share experiences, and build lifelong relationships through community events, peer support, youth programs, and family activities.
Who We Serve
MHA serves individuals affected by a variety of inherited bleeding disorders, including:
- Hemophilia A
- Hemophilia B
- von Willebrand disease
- Rare factor deficiencies
- Platelet disorders
- Women and girls with bleeding symptoms
We support people of all ages and backgrounds – from newly diagnosed individuals to adults who have managed their condition for decades.
Building Community Together
At MHA, we believe connection matters. Whether it’s a child attending their first camp, a teen learning independence skills, a parent seeking support, or an adult connecting with others who understand their journey, our programs are designed to create meaningful experiences that strengthen our community.
Our work is made possible through the dedication of volunteers, healthcare partners, sponsors, donors, and people who believe in the importance of education, advocacy, and support.
Get Involved
There are many ways to support MHA’s mission:
- Attend an educational or community event
- Volunteer your time and talents
- Participate in advocacy efforts
- Become a sponsor or community partner
- Make a donation to support programs and services
Together, we can continue building a stronger future for the bleeding disorders community.