Make Your Voice Count!
Advocacy is core to who we are.
Join us in raising awareness for bleeding disorders AND in advancing policies that improve the daily lives of individuals and families across our community.
As a grassroots organization, our strength comes from passionate advocates stepping up and speaking out. Your lived experience matters. Your story matters. YOUR voice is vital to our mission — and is how we create real systemic change.
2026 Legislative Priority: All Copays Count
This year, we’re supporting the All Copays Count legislation — a critical protection to ensure that copay assistance actually counts toward out-of-pocket cost sharing.
Copay accumulator and maximizer policies harm patients.
This bill puts the patient — not the payer — back at the center of healthcare.
Take Action. Stand With Us.
We need advocates, families, caregivers, young adult leaders, and community supporters all lending their voice to this movement.
Register by February 1 to be part of the advocacy team we take into this legislative season.
Your presence matters. Your participation shifts outcomes.
Let’s show lawmakers that our community shows up — together.
Learn More About Copay Accumulators
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