Missouri Virtual Advocacy Days

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Date(s) - March 9 2022 until March 10 2022 at All Day

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MHA is joining advocacy efforts in Missouri with the Gateway Hemophilia Association again this year. If you live in Missouri, you are invited to take part in advocacy days. There will be a brief training (online) on Monday, March 7 at 6:30pm to help prepare you for meeting with your representatives. (If you live in Kansas, we are looking for constituents to create Kansas Advocacy Days. Please contact the office, 816-479-5900 and/or scroll down and complete the information under “Share Your Experience” heading.)

Registration closes March 1, 2022

This year we will be asking for support of Senate Bill 1031

#AllCoPaysCount

Do you use copay assistance to afford treatment for your bleeding disorder or other health conditions? Have you faced high out-of-pocket costs for your treatment? If you answered yes to either of these questions, we want to hear from you!

Accumulator adjusters and maximizers, a newer insurance program, has put copay assistance at risk. These programs collect the copay assistance but do not count it toward your deductible or out-of-pocket maximum, which could increase what you pay for treatment, sometimes by hundreds or even thousands of dollars.

MHA is working to make every dollar count – whether it is paid by you or copay assistance – through legislation on the state and national levels, but we need to hear from you. Tell us why copay assistance is important to you.

Together, we can help our community access the treatments they need. To streamline information and scheduling meetings with state representatives, GHA is collecting registration information and therefore, the registration link will take you to their website. The fillable “Share Your Experience” below registration goes directly to MHA.