Virtual VWD Celebration – Embrace Life in Full Color

When

03/02/2026

7:00 PM - 8:00 PM

Event Type

Advocacy

Join us for a Virtual Von Willebrand Disease (VWD) Day Celebration, a fun and meaningful online event bringing our bleeding disorders community together. This interactive experience blends education, connection, and play, all in honor of celebrating & raising awareness for von Willebrand disease.

Kevin Ellebrecht, Community Education Specialist with Takeda, will lead an educational presentation focused on understanding and living well with von Willebrand disease (VWD). He will cover the basics of what VWD is and the role of von Willebrand factor (VWF), why taking steps to help prevent bleeds is important, and how to feel empowered to advocate for yourself or a loved one to reach treatment goals. Attendees will also learn about Vonvendi®, including what it is, who it may be for, and how it works.

And yes, there are prizes! Attendees will have multiple chances to win while engaging and having fun.

Whether you’re newly diagnosed, a parent, or a supporter, this celebration is a welcoming space to learn, laugh, and feel connected!

Once you register below, a zoom link will be emailed to you a couple days prior to the event.

Virtual VWD Celebration - Embrace Life in Full Color

Adults Attending(Required)
Click the PLUS sign next to the box to add more adults. Diagnosis examples: Hemophilia A, Hemophilia B, von Willibrands, Carrier, Other, N/A.
First Name Last Name Date of Birth Diagnosis
Children Attending
Click the PLUS sign next to the box to add more children. Diagnosis examples: Hemophilia A, Hemophilia B, von Willibrands, Carrier, Other, N/A.
First Name Last Name Date of Birth Diagnosis
Address(Required)
Street Address Address Line 2 City State ZIP Code
Phone(Required)
Email(Required)

First Name	Last Name	Date of Birth	Diagnosis

First Name	Last Name	Date of Birth	Diagnosis

	Midwest Hemophilia Association 202 E Elm St, Suite H Ozark, MO 65721
	(816) 479-5900
	[email protected]